My story
My story would not be what it is today had it not been for the support and encouragement I received from so many people throughout the years. They are too numerous to mention, but you all know who you are. Thank you for your assistance and your encouragement.
I am sure many Australians have similar stories to share, and some are even more exciting than mine. I encourage you to share your story. Here is mine.
I was born with a cyst on the brain and later diagnosed with spastic paraparesis. My extended family has roots in Central Europe and the UK, with the majority living in Australia for generations. Born in Subiaco, Western Australia, I consider myself a dinky-di Aussie and a bit of a larrikin. But, of course, to be politically correct, I am an import, as I am not one of the original Australians.
I was fortunate to have experienced both city and country living. I have lived through many exciting and sometimes dangerous experiences through luck and determination. Electrocuted by sticking a knife into the toaster or burning my arm on a hot exhaust were just ordinary childhood learning experiences.
Rolling my car in an accident was more exciting but not very useful. Trying to be like all my teenage friends took me down a path that could have ended in dire consequences, but the universe had other ideas. For years I was always trying to be like everyone else. Then, finally, it dawned on me, "I am not like everyone else". I am artistic and can see the big picture in life.
As a little boy, I did not consider having physical challenges even though I had difficulty balancing and just too many falls to remember. Medical professionals frequently pressed and prodded me and described my condition with tricky words or explained it simply as weak legs and balance problems. Education officials at school enrolment suggested I was a slow learner, and my balance issues would require a wheelchair. It was therefore deemed not in my best interest to attend ordinary schooling. Finally, I was registered in a regular school through my parent's determination.
After starting school, the family had a tree change and relocated to a small rural holding where I suddenly had more freedom and fewer restrictions. Surrounded by nature and livestock allowed me to experience farm animals, have a cubby house, and even a little pony. However, balancing was a problem. I continually slid off the pony as my legs were not strong enough to use the stirrups. So, I became an expert in inspecting the dirt and seeing the world from a different perspective, with my very patient pony giving me a curious look.
I had similar issues when I tried to ride a bike. I was ok sitting on a pushbike and hanging on to the handlebars but staying on it was another story. My feet seemed to have different ideas and often slid off and got caught in the bike chain, resulting in spectacular falls. I soon learned to relax when falling; this was like a stunt man training for the more spectacular falls I would have later in life.
Growing up in a rural setting, I learned to appreciate nature. I often rehomed wayward bugs, snails, lizards and caterpillars or lined them up in the grass for a race. At other times I would inspect the vegetable garden or the tunnel house where we grew produce for sale. If I found a strawberry or a ripe tomato before my dog or the blue tongue lizard found it, that was a pleasant surprise.
I loved climbing the moss-covered granite outcrop, chasing lizards or exploring the small property, talking to a couple of mares and their foals, or watching sheep and kangaroos in the next paddock. But, my cubby house was my private space. It was perched halfway up on a tree and offered a grand vista of the place. Homemade and constructed with rough timber left me with many splinters to remember my excursions.
On sweltering days I would play under the house built on stumps. I thought it was a fantastic place to play with my Tonka trucks without being in the way, and the dog would keep me company. I often preferred the dog before people as he accepted me as I was and never bullied or ridiculed me.
My schoolyears were primarily spent being taught life skills in Special Educated Centres of different schools. People thought I had mental as well as physical challenges. In hindsight, I now understand that concentrating on moving my body took all my attention, and I often missed the teacher's instructions.
In year eleven at Christchurch Grammar School, I experienced a severe epileptic seizure during a sporting carnival. This made everyone scatter for days after and treat me like I was possessed.
After more visits to specialists and discussions with the school, my parents decided I should come home. I was lucky as my family operated a country business. So I acquired skills that otherwise would have eluded me. I learned to drive a car and forklift and completed sales training in agricultural supplies and hardware.
In 2000 the family moved to Perth. Searching for work was a soul-destroying experience. I encountered being treated like I did not exist or with sympathy and concern. It was suggested that I lacked experience in the available positions. My acquired gait was also a concern as there was the potential to trip, and employers used the excuse of increased insurance to say no.
My parent's encouragement not to give up established a determination to break through boundaries of restrictions and overcome obstacles. So I enrolled in Perth TAFE to study Fine Art and eventually achieved a Diploma in Fine Arts followed by a Batchelor in General Arts.
Judged as having a disability and being repeatedly reminded of it by bureaucratic judgments, I continued searching for something meaningful to do. With assistance and encouragement, I am now developing some of my creative humanitarian ideas into working realities.
A person born with a disability invariably develops a different outlook on life. Expectations often have to be reassessed. The biggest issue for people with impairment is loneliness and isolation, which can develop depressed thoughts. Many would, therefore, benefit from encouragement and understanding rather than sympathy.